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Top 5 Crohn’s Disease Related Health Concerns

I know many of you saw this on various social media currents, but yes, it is true, I have decided to enter the Runners World Cover Search

rwcoversearch entry 437 susie suzlyfe

And to be honest? It kind of scares me sh*tless. But if there is one thing that I have learned in my 27 years of existence, sometimes you have to do something that empowers you to dream big, because only by dreaming big will you push your limits far enough to realize your potential. To live beyond expectation. To be a #badassunicorn (and, yes, they did ask the entrants to pick a hashtag for themselves and yes, I did pick #badassunicorn. BECAUSE I AM YO).

I would love your vote, (and you can vote once a day!!) but I am not going to beg or bludgeon you all for it. In the end, I simply hope that being a part of the contest will continue to help me to push my own boundaries and to get my story out there so that maybe my story might help someone else to dream big. 

Vote for Suz! #badassunicorn #437 #RWCoverSearch Click To Tweet

While we are on the subject of hopes and dreams, I want to talk a little bit about the future. More posts on Living with Crohn’s Disease.

Living with Crohn’s Disease : My Top 5 Health Concerns Related to Crohn’s Disease

There are a great multitude of complications that come with Crohn’s Disease. Today I am going to BRIEFLY discuss five health concerns that are of especial issue for myself and my future.

Please remember that this is just the tip of the iceberg, as it were, and that I, again, am not a professional or specialist in the field, but a patient. Please consult with your physician for any concerns regarding your illness or your body. 

My Top 5 Health Concerns Related to my Crohn’s Disease and Treatment

crohns disease top 5 health concerns suzlyfe

Osteopenia, Osteoporosis, and Bone Health

One of the major side effects of cortiosteroids is an increased risk of osteoporosis, a condition that is already a concern for most women and is something that runs in both the men and women of my family (Check out Farrah’s post on it here!). I had a bone scan done at 24 (following grad school) and I was already classified as “osteopenic” or having decreased bone density/precursors to osteoporosis. This is part of the reason that it is so important for me to be involved in strength training and weight bearing activities, take birth control, and maintain a healthy diet high in calcium to help me combat this risk. 

When I first got injured, I spoke of the fact that my body is more likely to suffer injuries due to my medications and the manipulation of my immune system. It is why I am honestly not surprised by my stress reaction/fracture (regardless of how carefully I train) that I am currently dealing with, nor am I surprised by how long it is taking to heal (doesn’t make it easier to deal with, though!). For reference, leading up to the injury, I was running about 20ish miles a week.

Fertility and Hormonal Health

I mentioned that hormones were closely linked to my Crohn’s and flares–often hand-in-hand with stress–and, to keep things very brief, and I’m sorry for the lack of explanation (I plan to come back to this topic again, don’t worry), getting pregnant is a) not going to be easy b) could basically cure me c) screw me over for life. We know that fertility is something that is often on my mind, and we also know that my body doesn’t do much properly regulate its hormones well.

My body to me.

My body to me.

In the interest of full disclosure, I have NEVER had normal periods. Before my Crohn’s diagnosis, I had very heavy periods, and though they were regularish, they weren’t, really. After my diagnosis, forget about it. I will fess up right here and right now to something that I know a lot of people don’t like to talk about: I do not get a period. And, per my fertility specialist, this is ok in my circumstances. This is not to say that amenorrhea is ok for all The only way that my body can support a “normal” period is on high doses of synthetic hormones, which is not good for me in the long run for a variety of reasons, so we are sticking to birth control for my bone health and mood (you are welcome, Alex). 

breathe meme

Deep breath. Getting pregnant, or at least trying to get pregnant, is something that is very scary for me. Read my post on some of my big fears about getting pregnant, and why marathon has been beneficial for me in addressing those fears, here. We are going to have to take me off of drugs that are keeping me healthy (and that got me healthy) in order to try something that may or may not work, and then to try to get pregnant (which may or may not work), and then try to stay pregnant (which who knows what that will do) and then deal with the aftermath. 

screw it meme

Deep breath. In short, I am terrified. I will come back to this later. For right now, I need to keep going with this topic!

Skin Health

Beyond fistulas and tissue break down, it is very important that I watch my skin closely for changes in my moles and other abnormalities. Farrah did a fantastic post yesterday on Skin Cancer, and so I am going to point you over to her for that. But the meds that I am on, the tendency of skin to break down, and also the fact that you can often tell your gut health through your skin make it very important for me to keep a close eye on it! last point: my skin doesn’t heal as well–I am more prone to scarring and keloids (build up of scar tissue). Mouth ulcers are common as well when I am flaring.

Liver Health

This is a big one. Many people forget that the liver is also a component of the digestive system, but remember–the liver is a processing plant for the body! Consequently, liver health is a HUGE concern for Crohn’s patients. Furthermore, the meds that I have been on in the past as well as the ones that I am on now are essentially not to be mixed with alcohol for several reasons, but most importantly, just know that in addition to having the potential for making me feel ill, they can do me a great deal of harm in the long run. 

I like options.

I like options.

I know that I often talk about alcohol and mixology on this blog. PLEASE KNOW that I am not a big drinker. Those beers and drinks? I have sips of them. I have a full cocktail or glass of wine to myself probably 4 times a year. Otherwise, I would say I total a drink and a half a week maybe. Soon I will talk about balancing this with college–I think that will be eye opening for a lot of you!

Anemia and Malabsorption

Because this post is going way longer than I anticipated, I am going to be a bit brief about this, also as I covered bits of it in my first Living with Crohn’s Disease post. Anemia is blood iron deficiency, and in IBD patients, it largely results from ulcers and inflammation in the digestive tract. Symptoms include fatigue, sallow skin, cold hands and feet (HELLO), shortness of breath, dizziness, and a bunch of other fun things. I combat anemia through a healthy diet (now that my body can more efficiently absorb nutrients) as well as iron supplements (only take iron supplements as prescribed by your doctor!!!! also, take them with Vitamin C, like OJ, to make it easier on your tummy, and avoid taking alongside calcium).

crispy m and ms

Malabsorption was a big issue when I was younger and sicker, but now it is just something we keep an eye on, making sure my vitamin levels are doing ok. Malabsorption is a big issue for growing kids who are flaring!

.@Suzlyfe's top 5 health concerns related to Living with #crohnsdisease #fitfluential #health Click To Tweet

Ok, that is a lot for today, but I really wanted to lay it all out there. There are a bajillion (technical term, obvs) of other concerns for Crohn’s patients, but these are the ones that are at the top of my list for reasons other than the normal (though I am sure many are on other people’s minds as well!).

I often talk about Living Beyond Expectation. What is a boundary that you are thinking about pushing in the future? Even a little one, like trying a new sport or food or way of doing your hair!

I know that I went over things a bit more quickly that I typically do–what would you like a follow up on? What would you like me to discuss next?

What magazine cover have you dreamed about being on the front of?

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  • Reply Marcia

    My hat is off to you for managing all of this my friend. I hope I see your pretty face gracing that RW cover!
    Marcia recently posted…Weekend Rewind and a RecipeMy Profile

    May 12, 2015 at 6:01 am
    • Reply suzlyfe

      You mean terrorizing the world on the cover, right, lol?

      May 12, 2015 at 4:07 pm
  • Reply Lisa @ Running Out Of Wine

    Wow, lots of concerns that go along with crohns. But it sounds like you have a good understanding of everything and how to keep yourself as healthy as possible. Good luck in the RW contest, you’ve got my vote!
    Lisa @ Running Out Of Wine recently posted…Zero G Storage Review And GiveawayMy Profile

    May 12, 2015 at 6:14 am
    • Reply suzlyfe

      Thank you Lis! I try to do my best, but I’m not going to lie–the future is a pretty sizeable question mark. So for right now, I am doing my best to live each day.

      May 12, 2015 at 4:07 pm
  • Reply Jess @hellotofit

    I didn’t realize all these other issues that are possible with Crohn’s. As much as I dislike that you have it, I appreciate the education you’re providing us!
    Jess @hellotofit recently posted…Link Love #17 and party pantsMy Profile

    May 12, 2015 at 6:24 am
    • Reply suzlyfe

      I was talking to my mom about this yesterday: I don’t know if I would trade my Crohn’s. I wouldn’t ask for it, certainly, but it part of who I am, and the life that I have. And I am, generally, completely blessed and fortunate.

      May 12, 2015 at 4:06 pm
  • Reply carissajade

    You have my vote! Also, major props for facing all the possible health adversities. You seem well prepared and knowledgeable and I’m proud of you for doing all you can to combat them!
    carissajade recently posted…Roadblock to Happiness: Radical AcceptanceMy Profile

    May 12, 2015 at 6:24 am
    • Reply suzlyfe

      Thank you. I”m trying, at least! Until the crazy takes over, you know.

      May 12, 2015 at 4:05 pm
  • Reply Deborah @ Confessions of a Mother Runner

    A lot to manage for sure! you got my vote! Remind us to vote again tomorrow or I will totally forget πŸ™‚
    Deborah @ Confessions of a Mother Runner recently posted…Ragnar Cape Cod-Moms Do It All Night LongMy Profile

    May 12, 2015 at 6:33 am
    • Reply suzlyfe

      You got it Deborah–I’ll rescind my former pledge and pester you all night and day!

      May 12, 2015 at 4:04 pm
  • Reply Michele

    Pregnancy is scary as hell on all ends without anything preexisting, so I see why you’d be more terrified. I wound up with a serious complication and there was never an answer for why it happened, it was dealt with but never understood, and no matter what these things are scary and you just never know what will happen! You definitely have all your bases covered though and are ready to tackle whatever comes up!
    Michele recently posted…10k and 5k Rubin Run RecapMy Profile

    May 12, 2015 at 6:51 am
    • Reply suzlyfe

      I know, I know–I watch perfectly healthy people have terrible goes of it. And vice versa. And things happen for no reason. GAH

      May 12, 2015 at 4:04 pm
  • Reply Annmarie

    I can’t even imagine having to go through and worry about all you do. Getting pregnant is scary enough but having to worry about it and all that it may or may not, is crazy stressful I can imagine. Keeping my fingers and toes crossed for you that it all works out without any complications when you do decide to take that step.
    Annmarie recently posted…Get Ready to Revolutionize Your Kitchen with CountertopMy Profile

    May 12, 2015 at 6:55 am
    • Reply suzlyfe

      Thank you, Annmarie. I am so fortunate to have friends like you who I know will help me through that time when it does come.

      May 12, 2015 at 4:03 pm
  • Reply Heather @Fit n Cookies

    You’re amazing. I know you can’t do anything about these things and you just have to take it, not like you can throw in the towel, but still, you are amazing for fighting it every step of the way! I didn’t realize birth control played a part in bone health though! Interesting to find out!
    Heather @Fit n Cookies recently posted…Compound Moves Circuit Workout + Weekly Workouts!My Profile

    May 12, 2015 at 7:11 am
    • Reply suzlyfe

      It definitely does–otherwise, I likely wouldn’t be on it! I love that I am surrounded by people who are drawn to me because I fight–and they encourage me to do so.

      May 12, 2015 at 4:02 pm
  • Reply Bri

    I’ve said it before and I’ll say it again: You’re amazing and such an inspiration!! You have my vote!
    Bri recently posted…Why you should run when you’re on vacationMy Profile

    May 12, 2015 at 7:28 am
    • Reply suzlyfe

      Thank you Bri! We all have our own ways of helping others–this is mine.

      May 12, 2015 at 4:01 pm
  • Reply Sam @ PancakeWarriors

    OMG my #badassunicorn. Totally going to vote for you duh!!! These healthy risks seem so scary yet you get up and run and stay healthy everyday. Some people would do the exact opposite. P. S. Love to hear you are a cheap date (no alcohol). πŸ™‚
    Sam @ PancakeWarriors recently posted…Hummus WrapMy Profile

    May 12, 2015 at 7:45 am
    • Reply suzlyfe

      Thank you Sam! I do what I can–we are both fighters, you and I! And yup, cheap date right here! Unless we are at a place with pricey fish, then shut up and pay up.

      May 12, 2015 at 4:01 pm
  • Reply Julie @ Running in a Skirt

    It’s always better to know what you are up against! You are a rock star! I hope you get picked for the cover πŸ™‚
    Julie @ Running in a Skirt recently posted…Greek Yogurt & Dill Potato SaladMy Profile

    May 12, 2015 at 7:56 am
    • Reply suzlyfe

      Exactly. Diagnosis and such is scary, but I would rather be prepared than have the floor rip out from under me.

      May 12, 2015 at 4:00 pm
  • Reply Gretchen | Gretchruns

    You know I already voted for you..duh πŸ™‚ Good luck!!

    One thing that I’m working on is being less scared to try new things. I’d love to try new classes at the gym or join running groups, but my fear holds me back from actually doing it. I’m afraid of not fitting in or not being on the same level as everyone else and looking stupid. I’m challenging myself to try one new class a month to get my out of my comfort zone, and I even joined a Run Club in my neighborhood this month (there was an incentive because you earn money for the running store that sponsors it, but it counts?!)
    Gretchen | Gretchruns recently posted…10 Days in Europe: How to PackMy Profile

    May 12, 2015 at 8:03 am
    • Reply suzlyfe

      I love that–trying new things is a challenge but I definitely think that you are well on your way. Look at you with all your travel! That is quite a start!!!

      May 12, 2015 at 3:59 pm
  • Reply Courtney @ Running For Cupcakes

    You are so happy and positive I would never know you were dealing with all of these concerns and issues. And you know I’ll be voting for you! #badassunicorn
    Courtney @ Running For Cupcakes recently posted…This Isn’t a Running Blog or Anything…My Profile

    May 12, 2015 at 8:19 am
    • Reply suzlyfe

      Thank you C! I try to be positive, but I’m not going to lie, there are times when I definitely am terrified. But I try.

      May 12, 2015 at 3:58 pm
  • Reply Stacie @ SimplySouthernStacie

    Just voted for you, friend! I hope you win that cover, so I can totally brag on you when I’m checking out in Traget. You better believe I will be telling everyone “Hey, I know her!” just like Buddy the Elf did with Santa.
    Stacie @ SimplySouthernStacie recently posted…Weekend Recap: Let the Good Times RollMy Profile

    May 12, 2015 at 8:30 am
    • Reply suzlyfe

      hahahahahahahaahahahahahahaha omg that just made my day lol

      May 12, 2015 at 3:58 pm
  • Reply Suzy

    I want to push the 3 hour boundary of the marathon. That’s what I want to do. It’s superficial, I get it, but it’s what I really want. Focusing on this helps me to channel my stress from other things onto running and pushing myself. I deal with so many other people pushing boundaries around me… I need to make sure I have my turn, too. I think you’d be a wonderful mama. The world needs another Suz.
    Suzy recently posted…SketchyMy Profile

    May 12, 2015 at 8:37 am
    • Reply suzlyfe

      Oh, you totally will. We just gotta get you fixed up. But you have the speed, the endurance, no you just need the opportunity πŸ˜€ And I know how you feel–you need something for yourself. Something that you can own, that is yours. I know so well what you mean.

      May 12, 2015 at 3:58 pm
  • Reply Jamie

    I love your honesty in this post. Sometimes with Crohn’s people don’t realize how it can affect other aspects of your life.

    I too applied for the RWCover contest… maybe they’ll let us do a joint cover? Haha : ) Hope you have a good Tuesday!!
    Jamie recently posted…Tried It TuesdayMy Profile

    May 12, 2015 at 8:42 am
    • Reply suzlyfe

      Hahahaa that’s just what I said on your post today! That would be magical!

      May 12, 2015 at 3:56 pm
  • Reply Rae

    Holy moly. Managing all of this is like an extra full-time job! And you handle it like a boss πŸ˜‰
    Rae recently posted…Race Recap: Vermont Respite House Jiggety Jog 5kMy Profile

    May 12, 2015 at 9:08 am
    • Reply suzlyfe

      Thanks, boo. I’m lucky that I don’t have to deal with allthethings all the days. Otherwise I would be out of my mind.

      May 12, 2015 at 3:56 pm
  • Reply Erin@BeetsPerMinute

    Suzy, you’re the ultimate #badassunicorn — you’ve certainly got my vote!!! I think you’re a wonderful example of strength and courage for so many others. <3
    Erin@BeetsPerMinute recently posted…Abroad City : An American Living in Glasgow #2My Profile

    May 12, 2015 at 9:19 am
    • Reply suzlyfe

      Thank you so much Erin! I suppose being a badass unicorn is better than being a chupacabra, right?

      May 12, 2015 at 3:55 pm
  • Reply Linda @ Veganosity

    Wow Susie, I never really knew that much about Crohn’s disease until I met you. I’m so sorry that you have so many serious health issues that you have to monitor. You certainly handle it with grace and strength, you have my utmost respect.

    May 12, 2015 at 9:19 am
    • Reply suzlyfe

      Thank you, Linda. I am lucky to have an incredible group of doctors and family who help me out. They give me the strength to have my own inner strength, you know?

      May 12, 2015 at 3:54 pm
  • Reply Sara @ Lake Shore Runner

    So happy for you and going for the cover πŸ™‚ I obviously voted and will continue to do so.
    Sara @ Lake Shore Runner recently posted…Tried it Tuesday #24: Rain is Only a Good Thing when Luke Bryan is InvolvedMy Profile

    May 12, 2015 at 9:37 am
    • Reply suzlyfe

      Thank you my dear. Who knows? SUZ TO TAKE OVER THE WORLD

      May 12, 2015 at 3:54 pm
  • Reply Tiffany @ The Chi-Athlete

    Running is tough. Running with stuff is tougher. Keeping yourself in-check and still having to motivate yourself to overcome those things, ON TOP OF running? I mean, c’mon. You deserve every happy step of running.

    Also? I’m voting like a mad woman.
    Tiffany @ The Chi-Athlete recently posted…K.I.S.S. & BrowniesMy Profile

    May 12, 2015 at 9:49 am
    • Reply suzlyfe

      I love you.
      And running is tough. So is life. Perhaps that is why I like it.

      May 12, 2015 at 3:53 pm
  • Reply Dannii @ Hungry Healthy Happy

    That is so exciting. I will be keeping everything crossed for you.
    I have always wanted to be on the cover of Rolling Stone magazine, you know, because I am a rock star and everything,
    Dannii @ Hungry Healthy Happy recently posted…Comment on Quorn Meat Free Sausage, Roast Pepper and Rocket Salad by DanniiMy Profile

    May 12, 2015 at 9:53 am
    • Reply suzlyfe

      OMG yes. You would be amazing on that. With like artfully placed tacos and margs.

      May 12, 2015 at 3:53 pm
  • Reply Hanna

    Good luck Susie! I voted for you! I think you are a great role model for those dealing with Crohn’s and it is very inspiring that you deal with all of these issues while still being upbeat, positive, hilarious, and a 7-minute BQer!!
    Hanna recently posted…Grandma’s Marathon Training: Week 12My Profile

    May 12, 2015 at 10:04 am
    • Reply suzlyfe

      Thank you so much Hanna! I do my best–I’m not perfect, but I hope that I can help someone else understand and accept that there is no reason to be!

      May 12, 2015 at 3:52 pm
  • Reply Smitha @

    I am so glad you are such an amazing spokesperson and role model for all those out there living with this disease. I love that you keep your humor #likeasuz with brutal honesty! I totally dig you!
    Smitha @ recently posted…Tried It Tuesday: #PEZHedz Review & #GIVEAWAYMy Profile

    May 12, 2015 at 10:10 am
    • Reply suzlyfe

      Well you know I dig you too! Thank you for always supporting me, and for supporting your beautiful child. I wear the Pace shirt often!

      May 12, 2015 at 3:51 pm
  • Reply Erin @ Erin's Inside Job

    You have my vote! Good I’m glad we have taken our lunch conversations and turned them into blog posts. Maybe we should just term them “think tank meetings w/ lots of food.”
    Erin @ Erin’s Inside Job recently posted…Best Free Sites For Making Blog GraphicsMy Profile

    May 12, 2015 at 10:33 am
    • Reply suzlyfe

      Seriously. I’ve been noticing the trend lol.

      May 12, 2015 at 3:50 pm
  • Reply Pragati // Simple Medicine

    You’ve got my vote for magazine covers and presidency! I feel like you have to deal with a lot more ish as a woman with Crohn’s. Which makes you even cooler in my book.

    May 12, 2015 at 10:54 am
    • Reply suzlyfe

      Thank you Pri. Though I’m not sure I’d want the presidency. I always wanted to be a princess, though πŸ˜€

      May 12, 2015 at 3:51 pm
  • Reply Suzlyfe's mommy, Clare

    Just a quick Suzlyfe mommy addition–I’m keeping it light (like my hair color)!

    Speaking of hair color, yes, both Eric and I have blue eyes and blond hair and so do Susie and her brother. However, Susie inherited the Nordic coloring (bolder) from her dad and Chris got the English version (paler) from me.
    Having blue-eyed, blond haired kids in the deep South meant that sunscreen was applied from the day AFTER their 6 month birthday…..labels tell you not to use on kids under 6 months of age……..and, for the most part, I’m a rule obeyer.
    We were absolutely religious about dosing them up really well, every time their cute little bodies were outside…..except once…….and…… I was a bad mommy. We had gone to a special event at a lake and both kids went right into the water from the car. I hadn’t “lotioned” them up and by the time I did, they were both wet. This was before the new sunscreens that you can put on wet kids. Both kids got sunburned, and I felt like the worst mom ever. They burned, and peeled and I just beat myself up about it.
    But, looking back, I have to admit, that wonderful line about not having to be perfect to be just fine, is true. I did the best I could and I know all of you with kids do, too.
    And IF they get wrinkles and lines? Well, we’ll just consider that part of the blue-eyed blondness that they inherited!
    Having sunscreen is a virtue, putting it on–is priceless

    May 12, 2015 at 11:01 am
    • Reply suzlyfe

      I will just never forget that your doctor told you that you had to wear sunscreen when you were 26 or you wouldn’t have a nose. That kind of stuck with me.

      May 12, 2015 at 3:50 pm
    • Reply Suzlyfe's mommy, Clare

      and this tirade was just in response to your skin issues………!

      May 13, 2015 at 3:15 pm
  • Reply Ange @ Cowgirl Runs

    Fabulous post, friend! You truly are one badassunicorn and look good while doing it!
    Ange @ Cowgirl Runs recently posted…Motivate Me Monday: 5/11My Profile

    May 12, 2015 at 11:25 am
    • Reply suzlyfe

      Thank you, my dear! Thank you always for your support πŸ˜€ NO LUNGING

      May 12, 2015 at 3:49 pm
  • Reply Kaella (KaellaOnTheRun)

    I can relate to all of these fears. Going off my medicine to get pregnant was TERRIFYING! I’m lucky I have London in my life but definitely dream about having more children some day. My health was AMAZING when I was pregnant (probably why I gained 60 pounds hahahaha) but, as you know, it can change so fast.

    Love you lady!! Thanks for being so open and honest!
    Kaella (KaellaOnTheRun) recently posted…Training Tuesday- 18 Days Until The Calgary MarathonMy Profile

    May 12, 2015 at 12:45 pm
    • Reply suzlyfe

      I know. I don’t think that you realize how much hope your having London and being healthy now gives me. So, so much hope.

      May 12, 2015 at 3:49 pm
  • Reply Maddie @ Dixie Runs

    You know, it’s crazy how much I don’t know about what people with this disease deal with. I have a few friends that have Crohn’s and I never really think about the smaller (but still significant) struggles that they go through that contribute to the bigger health issues. You are one strong woman! And I know you didn’t post this just so you can hear people say that, but you deserve to be recognized for everything you deal with πŸ™‚
    Maddie @ Dixie Runs recently posted…Mind Games and Some Good LuckMy Profile

    May 12, 2015 at 2:05 pm
    • Reply suzlyfe

      Well, thank you. That means a lot to me. It is a huge part of why I am the way that I am–why I live my life the way that I do, why fitness and health are such a big deal to me–thank you for saying that you saw the true reasons for my post!

      May 12, 2015 at 3:48 pm
  • Reply Jill

    Oh wow Susie. I really had no idea the extent to which Crohns affects all the systems of the body but I guess it’s not surprising since everything is connected. I hope to God a cure is found within (y)our lifetime.
    And duh I voted for you but didn’t know I could do so every day, so that I shall!!
    Jill recently posted…A Sprinkle, Pickle Juice, Mother’s Day, and a Double RainbowMy Profile

    May 12, 2015 at 6:43 pm
    • Reply suzlyfe

      I hope for a cure as well. But if what I am doing now is what I have to do for the rest of my life–I can handle that. But if that has to come at the expense of children, I don’t know…

      May 13, 2015 at 3:41 pm
  • Reply Kerri McGrail

    You have my vote! I hope you win! I don’t think people realize that many chronic illnesses have so many more side effects/health concerns that just the illness itself. I love your badass outlook on life- so awesome πŸ™‚
    Kerri McGrail recently posted…Interval Training: Why It’s Important & A Stair WorkoutMy Profile

    May 12, 2015 at 8:39 pm
    • Reply suzlyfe

      Thank you Kerri! Chronic illness are rarely one offs–the chronic nature means that there is opportunity for more complications and problems. I am just thankful to have such great support!

      May 13, 2015 at 3:41 pm
  • Reply GiGi Eats

    You and I certainly have the same concerns, however I do not want to post about them via blog comments, we can chat via email though. I do however have osteoporosis for sure. :-/ Womp Womp. I need to get another bone density test though because it’s been a while since my last one. I am assuming my bones are a lot stronger these days!
    GiGi Eats recently posted…Carnival In Your Mouth!My Profile

    May 12, 2015 at 9:20 pm
    • Reply suzlyfe

      If you want to chat, you know where to find me. I will need another bone scan done before too long. I would be interested if there is any change. I doubt there would be any improvement in my case–stasis would be fine!

      May 13, 2015 at 3:39 pm
  • Reply Farrah

    I’m glad you’re doing all that you can to kick potential-osteoporosis to the curb!! I’m on my OB/GYN rotation right now, so my preceptor’s been addressing a whole hell of a lot of fertility issues and the like. I haven’t met anyone with Crohn’s yet over there though, or I’d pass along whatever I found out! (Come to think of it, I think I’ll just ask him if he has any experience with that tomorrow. :O )

    You are a total badass unicorn and rock star for dealing with all this with such a positive and kickass attitude! <3 Thanks for sharing all of this, and I super-hope you get to be on that cover! :]

    (Thanks for sharing my posts! <3)
    Farrah recently posted…Review: Street Vegan + Creamy Strawberry Pink DrinkMy Profile

    May 12, 2015 at 10:24 pm
    • Reply suzlyfe

      Well, you did a fantastic job with them, so it is my pleasure! I would be super interested to know what your preceptor has to say. Fertility is always scary–for us all.

      May 13, 2015 at 3:38 pm
  • Reply Sue @ This Mama Runs for Cupcakes

    Wow, I had no idea. Thanks for being so honest and transparent about this. You are a true inspiration and you can bet you get my vote for the Runner’s World cover! XOXO
    Sue @ This Mama Runs for Cupcakes recently posted…5 Reasons You should run a Virtual RaceMy Profile

    May 13, 2015 at 6:21 am
    • Reply suzlyfe

      Thank you Sue! It really feels good to talk about it out in the open. I feel like many people know that I am careful, or that I have had food issues, or that running is important to me, but they don’t always know the why–it is great for me to get it out there!

      May 13, 2015 at 3:37 pm
  • Reply EB @ Running on E

    Great post. As with any challenge, education is key and it sounds like you have a great understanding of the challenges presented to you with Crohn’s. Doesn’t mean the situation doesn’t stink, but empowering yourself with the knowledge of what to expect and what you can control helps make it managable.

    OMG, you will be a great cover model. Just remember the little people when you are famous. πŸ˜‰
    EB @ Running on E recently posted…Weekly Training Recap: 5/4-5/10My Profile

    May 13, 2015 at 7:08 am
    • Reply suzlyfe

      LOL. I will always be a little person and part of the little people. That will never change! Even if I am famous in my own mind haha. And you are right–knowledge, especially in this case, truly is power.

      May 13, 2015 at 3:36 pm
  • Reply Beth @ Running with the Sunrise

    As always, thanks for being brave enough to be completely honest about what it’s like living with Crohn’s. It’s really eye opening and I’m glad to know more about it. I definitely voted for you! I now want to make a “Vote for Suz” shirt a la Napoleon Dynamite. And I want to wear it every day until you win. I might smell after a bit… πŸ™‚
    Beth @ Running with the Sunrise recently posted…Two Easy Speed Workouts for RunnersMy Profile

    May 13, 2015 at 8:02 am
    • Reply suzlyfe

      haha that would be amazing. You should get the shirt made by Ice Breakers and run a promotion with them–see how long it takes before it starts to smell!

      May 13, 2015 at 3:35 pm
  • Reply Lauren @ ihadabiglunch

    You’re so, so brave. The craziness that surrounds you getting pregnant is so scary and stressful. I’m happy you’re living your life to the fullest and healthiest now so that, in the future, if you have to make sacrifices to get pregnant, you’ll have no regrets (hopefully). Thank goodness you’re smart, educated, and financially stable enough to be able to take care of yourself. I can’t imagine being in your situation and not knowing what’s wrong or how to treat it.
    Lauren @ ihadabiglunch recently posted…SoulCycle Chicago (Studio Review)My Profile

    May 13, 2015 at 9:11 am
    • Reply suzlyfe

      I am so so fortunate to have the support and resources that I do, and that I have been treated so carefully and well by my doctors in the past. They help keep me in line (well, as best they can!).

      May 13, 2015 at 3:34 pm
  • Reply Mar @ Mar on the Run

    i’m rooting for you on RW!! I’d LOVE to see your bad ass on the cover and #badassunicorn?! love it. so you. πŸ™‚ I can’t imagine living with a chronic illness but I appreciate your candor and education about Crohn’s. Talk about pushing boundaries, I just quite my overly stressful job to pursue my own personal passions. Like you, scared sh*tless but had to be done. You!! good luck!
    Mar @ Mar on the Run recently posted…Life, Currently…My Profile

    May 13, 2015 at 9:18 am
    • Reply suzlyfe

      Imagine my face on RW, terrorizing the world, haha. I am so proud of you that you are working actively towards what you love, even though you know that the path won’t be easy. We all need to face our fears to be happy!

      May 13, 2015 at 3:33 pm
  • Reply Sara @ lifebetweenthemiles

    I love that you are shedding more light onto Crohns, I had no idea there were so many cascading effects, but understanding them helps you to fight them and it looks like you are doing an amazing job my friend, and good luck in the RW contest–I voted for you!! xo

    May 13, 2015 at 10:35 am
    • Reply suzlyfe

      Thank you thank you! Crohn’s really is a pack of animals, not just a one-off thing that can be dealt with and then moved on from. Which is a huge part of why I have to be so comprehensive in my treatment.

      May 13, 2015 at 3:31 pm
  • Reply Katie @ Gettin' My Healthy On

    Well this post was very eye opening for me. I don’t know much at all about Crohn’s Disease, but you’ve given me a glimpse inside the complexity of living with it. Kudos to you for being such a fun loving person while dealing with so many health concerns on a regular basis. Just one of the reasons why you deserve a cover highlighting your awesomeness. πŸ™‚
    Katie @ Gettin’ My Healthy On recently posted…A Few of My Favorite ThingsMy Profile

    May 13, 2015 at 1:54 pm
    • Reply suzlyfe

      Aw, well thank you. I do my best, and I’m in a good space now, but ask me again after we start dealing with the fertility thing full stop. That will likely be very different!

      May 13, 2015 at 3:30 pm
  • Reply Emily

    Wow Sue. I really had no idea that dealing with Crohn’s disease entails all of that. I am amazed at just how you handle it, and I was wondering if you could delve more into malabsorption? I will be praying for you friend.

    Boundary. I would like to push past the boundary of not being able to do a pull-up and breaking my last 5k record. Those have been hanging over me for a long time, and now I just need to put the work into crushing them by God’s strength.
    Emily recently posted…WIAW + Perfect Day in the LifeMy Profile

    May 13, 2015 at 5:56 pm
  • Reply Proud of this House (Blogging Integrity) - Suzlyfe

    […] #RWCoverSearch and My Top 5 Crohn’s Related Health Concerns […]

    May 14, 2015 at 5:41 am
  • Reply Crohn's Disease - fairyburger

    […] For a personal account from a super badass living and kickin’ butt with Crohn’s, check out one of my favorite bloggers–Susie @ SuzLyfe! She also shared her top 5 related health concerns, which you can read about here. […]

    May 17, 2015 at 10:32 pm
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